Opinión de los profesionales sanitarios sobre la adherencia y manejo de tratamientos de larga duración en adolescentes / Opinion of health professionals on adherence and management of long-term treatments in adolescents

Objetivo. Conocer la opinión de los profesionales sanitarios sobre la adherencia y el manejo de tratamientos de larga duración en adolescentes en un hospital de tercer nivel. Método. Estudio observacional, descriptivo y transversal, realizado en el Hospital Universitari Vall d'Hebron de Barcelona, España. Los sujetos de estudio fueron los profesionales sanitarios que atienden a los adolescentes trasplantados de órganos sólidos, seropositivos, con enfermedad oncohematológica, diabetes o fibrosis quística. La recogida de datos se realizó mediante cuestionario autocumplimentado, elaborado específicamente para este estudio. Resultados. Participaron 105 profesionales (70 %). Un 80 % eran enfermeras. El 56 % consideró que el cumplimiento del tratamiento de los adolescentes era bueno. Un 43 % señaló que la adherencia no se abordaba bien. El 79 % de los profesionales no disponían de tiempo planificado para realizar educación sanitaria relacionada con el tratamiento. El 19.5 % de las enfermeras y el 72,2 % de los médicos indicaron disponer de instrumentos de evaluación de la adherencia. El 39 % de los participantes realizó propuestas de mejora. Conclusiones. Casi la mitad de los profesionales opina que la adherencia terapéutica no se aborda adecuadamente. Es importante la evaluación de la adherencia a los tratamientos para identificar causas de bajo cumplimiento e instaurar y evaluar intervenciones adecuadas (AU)

Objective. To assess opinion of health professionals about adherence and management of long-term treatments in adolescents in a tertiary hospital. Method. A cross-sectional study was carried out in the Vall d'Hebron University Hospital in Barcelona, Spain. Participants were health professionals who care adolescents with solid organ transplant, hematologic disease, diabetes, cystic fibrosis or HIV+. Data collection was performed by self-administered questionnaire, developed specifically for this study. Results. A total of 105 professionals (70 %) participated in the study, 80 % were nurses, 56 % of them indicated that treatment compliance was good. 43 % indicated that adherence was not addressed well and 79 % of professionals did not have planned time to conduct health education related to treatment. 19.5 % of nurses and 72.2 % of physicians reported having adherence assessment tools. 39 % of participants made ??suggestions for improvement. Conclusions. Almost half of the professional indicate that the adherence is not adequately addressed. It is important to evaluate adherence to treatment to identify causes of low compliance and establish and evaluate appropriate interventions (AU)

[OPINION OF HEALTH PROFESSIONALS ON ADHERENCE AND MANAGEMENT OF LONG-TERM TREATMENTS IN ADOLESCENTS]. / Opinión de los profesionales sanitarios sobre a adherencia y manejo de tratamientos de larga duración en adolescents.

OBJECTIVE: To assess opinion of health professionals about adherence and management of long-term treatments in adolescents in a tertiary hospital. METHOD: A cross-sectional study was carried out in the Vall d'Hebron University Hospital in Barcelona, Spain. Participants were health professionals who care adolescents with solid organ transplant, hematologic disease, diabetes, cystic fibrosis or HIV+. Data collection was performed by self-administered questionnaire, developed specifically for this study. RESULTS: A total of 105 professionals (70%) participated in the study, 80% were nurses, 56% of them indicated that treatment compliance was good. 43% indicated that adherence was not addressed well and 79% of professionals did not have planned time to conduct health education related to treatment. 19.5% of nurses and 72.2% of physicians reported having adherence assessment tools. 39% of participants made suggestions for improvement. CONCLUSIONS: Almost half of the professional indicate that the adherence is not adequately addressed. It is important to evaluate adherence to treatment to identify causes of low compliance and establish and evaluate appropriate interventions.

Cumplimiento del tratamiento en el trasplante renal pediátrico / Compliance with treatment in paediatric renal transplant

Son numerosas las causas del incumplimiento terapéutico en pacientes pediátricos con trasplante renal. El objetivo de este trabajo fue, identificar las dificultades que presentaban las familias y los pacientes para el correcto cumplimiento del tratamiento en receptores de trasplante renal pediátrico. Para ello se realizó un estudio observacional descriptivo y transversal con la participación de 41 pacientes de edades comprendidas entre los 5 y 18 años. Como instrumento de medida se diseñó una encuesta con preguntas cerradas sobre aspectos demográficos, conocimientos y actitudes con respecto al tratamiento recibido, autonomía o dependencia en la administración, adhesión y cansancio del paciente y cuidador. Se realizó la encuesta al paciente y cuidador principal. El porcentaje de incumplimiento fue del 12,1% observándose mayor incumplimiento en receptores adolescentes. Los pacientes que presentaron rechazo de injerto fueron 14, de los cuales, 9 por causa inmunológica y 5 por abandono de tratamiento. El 90% de los pacientes manifestaban haber recibido una información completa respecto a conocimientos e importancia de la toma. Presentaban un correcto conocimiento de los inmunosupresores, el horario y la adherencia de la toma. El 18% manifestaron desconocimiento sobre los efectos secundarios. Las razones para dejar de tomar la medicación fueron principalmente el cansancio del paciente o cuidador (70%) y olvido en un 50%, de los cuales el 22% presentaron olvido sólo en una ocasión. En cuanto a las incidencias en la toma del tratamiento, se observaron diarreas (50%) y vómitos (42%). La mayoría de los pacientes tienen supervisión de la toma de medicación por parte de un cuidador, que habitualmente la madre. Todos los pacientes estudiados disponían de ayuda social (100%) y financiación del tratamiento. En general podemos decir que los pacientes se sienten motivados a seguir el tratamiento, pero se sienten agotados debido al largo periodo del mismo (AU)

There are numerous causes of therapeutic noncompliance in paediatric patients with a renal transplant. The aim of this study was to identify the difficulties presented by families and patients for correct compliance with treatment in paediatric recipients of renal transplants. To do so, a transversal, descriptive observational study was carried out with the participation of 41 patients of ages ranging from 5 to 18. As a measuring instrument, a questionnaire was designed with closed questions on demographic aspects, knowledge and attitudes to the treatment received, self-sufficiency or dependence in administration, compliance and tiredness of the patient and carer. The questionnaire was applied to the patient and main carer. The percentage of non-compliance was 12.1%, and was observed to be higher in adolescent recipients. A total of 14 patients presented graft rejection, of which 9 were for immunological reasons and 5 due to abandoning the treatment. 90% of patients stated that they had received full information about the medication and its importance. They showed correct knowledge of the immunosuppressant medication, timetable and compliance with dosage. 18% expressed lack of knowledge of side effects. The reasons for stopping to take the medication were mainly tiredness of the patient or carer (70%) and forgetfulness in 50%, of whom 22% only forgot to take the medication on one occasion. As regards incidents associated to taking the medication, diarrhoea (50%) and vomiting (42%) were observed. Most patients are supervised in taking their medication by a carer, usually their mother. All the patients studied had social assistance (100%) and financing of the treatment. In general, we can say that patients feel motivated to continue the treatment, but feel exhausted due to its long duration (AU)

Sesión de hemodiálisis en pacientes con peso inferior a 6 kilos / No disponible

No disponible